CHAPTER 154. CONSORTIUM OF ALZHEIMER'S DISEASE CENTERS
EDUCATION CODE
TITLE 3. HIGHER EDUCATION
SUBTITLE H. RESEARCH IN HIGHER EDUCATION
CHAPTER 154. CONSORTIUM OF ALZHEIMER'S DISEASE CENTERS
Sec. 154.001. DEFINITION. In this chapter, "council" means the
Texas Council on Alzheimer's Disease and Related Disorders.
Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,
1999. Renumbered from Education Code, Sec. 151.001 by Acts 2003,
78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.
Sec. 154.002. CONSORTIUM; CLINICAL CENTERS. (a) The council
shall establish a consortium of Alzheimer's disease centers, to
be initially composed of the Alzheimer's disease centers at the
Baylor College of Medicine, the Texas Tech University Health
Sciences Center, the University of North Texas Health Science
Center at Fort Worth, and The University of Texas Southwestern
Medical Center at Dallas. The council may add additional
consortium participants to the consortium as necessary.
(b) The council shall provide funds to the consortium
participants to assist those participants to develop clinical
centers that meet the standards of the consortium.
(c) A participant's clinical center may employ any personnel
necessary to support its activities, including clinical,
administrative, and data management personnel.
Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,
1999. Renumbered from Education Code, Sec. 151.002 by Acts 2003,
78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.
Sec. 154.003. PROGRAMS. (a) The consortium shall coordinate
and direct its programs to provide to the extent practicable
centralized, uniform services among the consortium participants.
(b) The consortium shall:
(1) offer clinical services to all patients of the consortium's
clinical centers, notwithstanding the independent status of each
participant;
(2) establish a database for:
(A) making data available to each consortium participant
according to its specific activities;
(B) providing a resource index to facilitate research projects;
and
(C) providing data on patient health outcomes to appropriate
state agencies and to researchers in this state; and
(3) with the aid of the council and the National Alzheimer's
Association or its affiliate, develop and distribute to patients,
caregivers, and health care professionals educational materials
and services and inform patients of any research projects and
therapeutic trials open for their participation.
Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,
1999. Renumbered from Education Code, Sec. 151.003 by Acts 2003,
78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.
Sec. 154.004. STEERING COMMITTEE. To advise the council on
consortium activities, the council shall establish a steering
committee composed of one representative from each consortium
participant.
Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,
1999. Renumbered from Education Code, Sec. 151.004 by Acts 2003,
78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.
Sec. 154.005. DATA COORDINATING CENTER. (a) The council shall
establish a data coordinating center to be located at the Texas
Tech University Health Sciences Center. To the extent
practicable, the center shall be operated in association with the
data management operations of that institution's Alzheimer's
disease center.
(b) The data coordinating center shall establish a database and
make data available to each consortium participant according to
the specific activities of the participant.
(c) The council shall appoint a physician or other person with a
similar clinical background to administer the center.
(d) The person administering the center may employ any personnel
necessary to support the center's activities, including a project
coordinator. The person may require the project coordinator to
hold a master's or doctoral degree related to public health.
(e) The project coordinator shall coordinate the center's
activities among the center, the consortium participants, the
council, and the public.
Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,
1999. Renumbered from Education Code, Sec. 151.005 by Acts 2003,
78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.
Sec. 154.006. FUNDING. (a) The council may receive state
appropriated funds for the purpose of supporting the research
activities of the consortium under this chapter.
(b) The council may solicit and accept gifts, grants, and
donations for purposes of this chapter.
Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,
1999. Renumbered from Education Code, Sec. 151.006 by Acts 2003,
78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.
Sec. 154.007. ACCESS TO DATA. (a) The council may restrict
access to the data maintained by the consortium or data
coordinating center to consortium participants that contribute
data as requested by the council.
(b) The steering committee periodically shall review and
evaluate the availability and sharing of data under this section.
Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,
1999. Renumbered from Education Code, Sec. 151.007 by Acts 2003,
78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.
Sec. 154.008. PERFORMANCE REVIEW. The council, with
recommendations from the steering committee, shall review and
evaluate the performance of the consortium participants and data
coordinating center at least every five years.
Added by Acts 1999, 76th Leg., ch. 1381, Sec. 1, eff. Aug. 30,
1999. Renumbered from Education Code, Sec. 105.008 by Acts 2003,
78th Leg., ch. 1275, Sec. 2(50), eff. Sept. 1, 2003.