136A.3 - ESTABLISHMENT OF CENTER FOR CONGENITAL AND INHERITED DISORDERS -- DUTIES.
136A.3 ESTABLISHMENT OF CENTER FOR CONGENITAL AND
INHERITED DISORDERS -- DUTIES.
A center for congenital and inherited disorders is established
within the department. The center shall do all of the following:
1. Initiate, conduct, and supervise statewide screening programs
for congenital and inherited disorders amenable to population
screening.
2. Initiate, conduct, and supervise statewide health care
programs to aid in the early detection, treatment, prevention,
education, and provision of supportive care related to congenital and
inherited disorders.
3. Develop specifications for and designate a central laboratory
in which tests conducted pursuant to the screening programs provided
for in subsection 1 will be performed.
4. Gather, evaluate, and maintain information related to causes,
severity, prevention, and methods of treatment for congenital and
inherited disorders in conjunction with a central registry, screening
programs, genetic health care programs, and ongoing scientific
investigations and surveys.
5. Perform surveillance and monitoring of congenital and
inherited disorders to determine the occurrence and trends of the
disorders, to conduct thorough and complete epidemiological surveys,
to assist in the planning for and provision of services to children
with congenital and inherited disorders and their families, and to
identify environmental and genetic risk factors for congenital and
inherited disorders.
6. Provide information related to severity, causes, prevention,
and methods of treatment for congenital and inherited disorders to
the public, medical and scientific communities, and health science
disciplines.
7. Implement public education programs, continuing education
programs for health practitioners, and education programs for
trainees of the health science disciplines related to genetics,
congenital disorders, and inheritable disorders.
8. Participate in policy development to assure the appropriate
use and confidentiality of genetic information and technologies to
improve health and prevent disease.
9. Collaborate with state and local health agencies and other
public and private organizations to provide education, intervention,
and treatment for congenital and inherited disorders and to integrate
genetics and genomics advances into public health activities and
policies. Section History: Recent Form
2004 Acts, ch 1031, §4, 12 Footnotes
Former §136A.3 repealed by 2004 Acts, ch 1031, §11